Why We Ride to Defeat ALS: The Steve Weaver Story
Every year since 2006 the Skyline Construction DreamWeavers gear up to participate in the Ride to Defeat ALS and unite because of one man, Steve Weaver. The story of his battle with ALS inspires us to help fight to defeat this deadly disease. Each DreamWeaver rides for Steve, whether we knew him or not.
Steve was a Project Manager in his prime at Skyline over a decade ago. He was a healthy, athletic guy in his mid 30s, full of energy and life with a wife and two young twin boys. One day, he and a colleague decided to settle an argument over who was the fastest runner. Skyline made an event of it, closed off one lane of Clay Street and invited 200 people witness this 50 yard dash. The race was close, too close. But Steve lost the race by half a leg.
Throughout the race however, people noticed that Steve's leg was bending awkwardly at the knee. After seeing video footage and photos of the race, he mentioned that he was also noticing gaps between his thumb and index fingers and he was having a hard time gripping a pen. He decided to get it checked out. Steve underwent 6 months of testing before the diagnosis was confirmed. It was ALS Lou Gehrig's disease.
The news was devastating.
He attempted to carry on everyday life and work as best he could, but his condition worsened. Steve eventually needed full time care, special equipment and additional services to compensate for the slow paralyzation of this disease. Steve described living with ALS as being "buried alive," where the brain is perfectly coherent, but it is a struggle to communicate and respond to one's surroundings.
His devoted wife, Linda, left her career to become his full-time nurse while his sons tried to stay strong, but it devastated them to watch their dad slowly die. Steve and his family spent time traveling, seeing everything on his bucket list and then some… but within 2 short years Steve passed away.
ALS is a tragic and horrible disease. If we can play a small role in making this go away, one day, it must be done. ALS hit the Skyline family hard. We felt angry and wanted to do something. Steve asked us to raise money to help end the nightmare for others. Every year since, we've honored his request in his memory.